As a research study volunteer, you have the right to know:
- What the research study is about
- What you will be asked to do
- How much time it will take
- What good may come from the study for you or for other people and what new things may be learned
- The risks, side effects, pain, or other things that may happen if you participate
- How information about you will be kept private or shared
- Who to contact with questions
- What will happen if you have problems because of participating
- Where to look for information about what was learned after the research study is over
- All of the treatment options outside of participating in a research study
You also have the right to:
- Get answers to any questions you have before you decide to participate and after you agree to participate
- Say “no” if you do not want to participate
- Change your mind; you can stop participating whenever you want
- Receive a copy of the consent form or information sheet