Participant Bill of Rights

As a research study volunteer, you have the right to know:

  • What the research study is about
  • What you will be asked to do
  • How much time it will take
  • What good may come from the study for you or for other people and what new things may be learned
  • The risks, side effects, pain, or other things that may happen if you participate
  • How information about you will be kept private or shared
  • Who to contact with questions
  • What will happen if you have problems because of participating
  • Where to look for information about what was learned after the research study is over
  • All of the treatment options outside of participating in a research study

You also have the right to:

  • Get answers to any questions you have before you decide to participate and after you agree to participate
  • Say “no” if you do not want to participate
  • Change your mind; you can stop participating whenever you want
  • Receive a copy of the consent form or information sheet